Real Stories
We know that beginning with their first symptoms through an often long path to diagnosis and treatment, people living with a rare disease have to navigate a sobering new normal while managing other life priorities.
But rare disease patients persevere. With our help, they’re reconnecting, moving forward, and making every day of their life what they want it to be.
![Adelyn, diagnosed with HPP at 2 days old](/-/media/alexion_global/images/patient-story-detail-masthead/adelyn-01-r.png?rev=c9d6507da124499796f26d9399c5222f)
Adelyn
Diagnosed with HPP at 2 days old
![Aimee, Diagnosed with gMG](/-/media/alexion_global/images/patient-story-detail-masthead/aimee-07291_1440x1440.png?rev=2691c247536349b69c8a77969335338a)
Aimee
Living with gMG
![Albie, diagnosed with LAL-D as an infant](/-/media/alexion_global/images/patient-story-detail-masthead/albie-01-r.jpg?rev=ef271ab5066a450cad7522856006a6d6)
Albie
Diagnosed with LAL-D as an infant
![](/-/media/alexion_global/images/patient-story-detail-masthead/carousel-image-1.png?rev=0770a6786a704b219ccee2065ae4d345)
Alyssa
Diagnosed with aHUS at 21 years old
![Bill, diagnosed with PNH at 28 years old, with his wife](/-/media/alexion_global/images/patient-story-detail-masthead/bill-03-r.png?rev=ef405a4c300b46efb40a166c81e5642a)
Bill
Diagnosed with PNH at 28 years old
![Donnan, diagnosed with aHUS at 39 years old](/-/media/alexion_global/images/patient-story-detail-masthead/donnan-01-w.jpg?rev=1acf328bf29941d3a552c3c1bb3bf66c)
Donnan
Diagnosed with aHUS at 39 years old
![Erica, diagnosed with aHUS at 22 years old](/-/media/alexion_global/images/patient-story-detail-masthead/erica-01-r.png?rev=b318c7f24c1e4f5b9d16fbd2d4dce7a2)
Erica
Diagnosed with aHUS at 22 years old
![Evie, diagnosed with HPP at 2 weeks old, playing on a playground](/-/media/alexion_global/images/patient-story-detail-masthead/evie-01-r.png?rev=5fb43f3f023e44d3a6b8cf3b5a2e4e8f)
Evie
Diagnosed with HPP at 2 weeks old
![Jill, diagnosed with aHUS at 28 years old](/-/media/alexion_global/images/patient-story-detail-masthead/jill-02-r.jpg?rev=f63aba05033e43888618758e0269fb9b)
Jill
Diagnosed with aHUS at 28 years old
![Joe, diagnosed with PNH at 24 years old, training for mixed martial arts](/-/media/alexion_global/images/patient-story-detail-masthead/joe02sv3.jpg?rev=39221737d8f54aa89d49e06671265374)
Joe
Diagnosed with PNH at 24 years old
![Julia Diagnosed with aHUS at 15 years old, and her sister](/-/media/alexion_global/images/patient-story-detail-masthead/julia-02-s.jpg?rev=8caa5327036946b1bffe19d06e4be620)
Julia
Diagnosed with aHUS at 15 years old
![Justice, Diagnosed with aHUS at 9 months old](/-/media/alexion_global/images/patient-story-detail-masthead/justice-06-r.jpg?rev=6e167ab55679447a9535772b2a0336b7)
Justice
Diagnosed with aHUS at 9 months old
![Kendall, diagnosed with NF1 at 10 weeks old](/-/media/alexion_global/images/patient-story-detail-masthead/nf1-page-square-hero.jpg?rev=5d26ca0544c74372acbdd44ed2082687)
Kendall
Diagnosed with NF1 at 10 weeks old
![Kim, living with NMOSD](/-/media/alexion_global/images/patient-story-detail-masthead/slide-3_kim-2560x2560.jpg?rev=a890949fe4ab472f93e43aee1ca858a5)
Kim
Diagnosed with NMOSD
![Lisa, diagnosed with PNH at 34 years old](/-/media/alexion_global/images/patient-story-detail-masthead/lisa-01-r.jpg?rev=f3e9231dfb884812bbcb2cba7eb35976)
Lisa
Diagnosed with PNH at 34 years old
![Liz, diagnosed with gMG](/-/media/alexion_global/images/patient-story-detail-masthead/liz-slide-4.png?rev=33f37ed07534435f9266a163dad4c715)
Liz
Living with gMG
![Maureen & Lauren, diagnosed with LAL-D at 8 and 12 years old](/-/media/alexion_global/images/patient-story-detail-masthead/walsh-01-r.jpg?rev=4a73b4f96e78475c9dfc20fdd4e333fe)
Maureen and Lauren
Diagnosed with LAL-D at 8 and 12 years old
![Meg, living with NMOSD](/-/media/alexion_global/images/patient-story-detail-masthead/meg_2_2560x1600_image-carousel-(1).png?rev=5bd8e91220ef437387f4a7da0eb77b07)
Meg
Diagnosed with NMOSD at 15 years old
![Ruthie, diagnosed with PNH at 28 years old, with her husband](/-/media/alexion_global/images/patient-story-detail-masthead/ruthie-01-r.png?rev=21492d68784a4c4484c312e03acf3f91)
Ruthie
Diagnosed with PNH at 28 years old
![Tanner, diagnosed with HPP at 4 days old](/-/media/alexion_global/images/patient-story-detail-masthead/tanner-01-r.jpg?rev=d2c1236f6063475e966c133aa6ef3693)
Tanner
Diagnosed with HPP at 4 days old
![The Trendys, diagnosed at 17, 14, 11, and 9 with LAL-D](/-/media/alexion_global/images/patient-story-detail-masthead/trendy-01-r.jpg?rev=ed95030a296e422f8c387b73fede1c49)
The Trendy Family
Diagnosed at 17, 14, 11, and 9 with LAL-D
![Tristan, diagnosed with LAL-D at 5 years old](/-/media/alexion_global/images/patient-story-detail-masthead/tristan-01-r.png?rev=8974302aa45145c68385407559a3a15e)
Tristan
Diagnosed with LAL-D at 5 years old
![Victor, diagnosed with PNH at 27 years old](/-/media/alexion_global/images/patient-story-detail-masthead/victorpnh-img1262-edit-513x320b-tight.png?rev=19a364fb998f49c8a2f57a578904739d)
Victor
Diagnosed with PNH at 27 years old
![](/-/media/alexion_global/images/patient-story-detail-masthead/carousel-image-1.png?rev=0770a6786a704b219ccee2065ae4d345)
Alyssa
Diagnosed with aHUS at 21 years old
![Donnan, diagnosed with aHUS at 39 years old](/-/media/alexion_global/images/patient-story-detail-masthead/donnan-01-w.jpg?rev=1acf328bf29941d3a552c3c1bb3bf66c)
Donnan
Diagnosed with aHUS at 39 years old
![Erica, diagnosed with aHUS at 22 years old](/-/media/alexion_global/images/patient-story-detail-masthead/erica-01-r.png?rev=b318c7f24c1e4f5b9d16fbd2d4dce7a2)
Erica
Diagnosed with aHUS at 22 years old
![Jill, diagnosed with aHUS at 28 years old](/-/media/alexion_global/images/patient-story-detail-masthead/jill-02-r.jpg?rev=f63aba05033e43888618758e0269fb9b)
Jill
Diagnosed with aHUS at 28 years old
![Julia Diagnosed with aHUS at 15 years old, and her sister](/-/media/alexion_global/images/patient-story-detail-masthead/julia-02-s.jpg?rev=8caa5327036946b1bffe19d06e4be620)
Julia
Diagnosed with aHUS at 15 years old
![Justice, Diagnosed with aHUS at 9 months old](/-/media/alexion_global/images/patient-story-detail-masthead/justice-06-r.jpg?rev=6e167ab55679447a9535772b2a0336b7)
Justice
Diagnosed with aHUS at 9 months old
![Adelyn, diagnosed with HPP at 2 days old](/-/media/alexion_global/images/patient-story-detail-masthead/adelyn-01-r.png?rev=c9d6507da124499796f26d9399c5222f)
Adelyn
Diagnosed with HPP at 2 days old
![Evie, diagnosed with HPP at 2 weeks old, playing on a playground](/-/media/alexion_global/images/patient-story-detail-masthead/evie-01-r.png?rev=5fb43f3f023e44d3a6b8cf3b5a2e4e8f)
Evie
Diagnosed with HPP at 2 weeks old
![Tanner, diagnosed with HPP at 4 days old](/-/media/alexion_global/images/patient-story-detail-masthead/tanner-01-r.jpg?rev=d2c1236f6063475e966c133aa6ef3693)
Tanner
Diagnosed with HPP at 4 days old